
Miss MRKH
What is MRKH?
Here’s what you find when you look it up:

MRKH: Mayer-Rokitansky-Küster-Hauser Syndrome
- MRKH syndrome is a rare disorder that affects women. It is characterized by the failure of the uterus and the vagina to develop properly in women who have normal ovarian function and normal external genitalia. Women with this disorder develop normal secondary sexual characteristics during puberty (e.g., breast development and pubic hair), but do not have a menstrual cycle. Often, the failure to begin the menstrual cycle is the initial clinical sign of MRKH syndrome. The range and severity of MRKH syndrome can vary greatly and the disorder is generally broken down into type I, which occurs as an isolated finding, and type II, which occurs with abnormalities of additional organ systems including mainly the kidneys and the skeleton. Because of the nature of the disorder, MRKH syndrome can cause significant psychological challenges and counseling is recommended. The exact cause of MRKH syndrome remains largely unknown, but there is now no doubt of a genetic origin. In this respect, an update on the most recent research publications shows the involvement of several chromosomal segments, some of them including genes likely to account for the disorder.

Here is my long story, shortened
In 2016, I went to the gynecologist to get put on birth control. Come to find out I am the birth control. They told me they believe it is MRKH Syndrome and they had only seen this once in their 60 year practice; they referred me to a specialist that I soon began seeing. During our visit they did multiple ultrasounds and did not see a uterus and my vagina was shallow. I’ll break my testimony off into categories below because it has affected different areas of my life in different ways.
Miss MRKH
- I am working on completing this blog. Please be patient with me.
- This is a safe space for you to come and feel part of a community that you may need.
- You are not alone.
- You are woman enough.
What’s important to me
Areas of Focus
Here are some of my hobbies that keep me sane
Working Out
Being Outside
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Taking care of my dog
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Share your story and I’ll post it here for our community!
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If you want advice or just to chat. You are not alone.
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